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Publication-only abstracts (abstract number preceded by an "e"), published in conjunction with the 2019 ASCO Annual Meeting but not presented at the Meeting, can be found online only.

Understanding patient advance directives status in a community oncology practice using an electronic patient-reported outcomes (ePRO) system.

Psychosocial and Communication Research

Symptoms and Survivorship

2019 ASCO Annual Meeting

Abstract No:

J Clin Oncol 37, 2019 (suppl; abstr e23181)

Author(s): Joanne S. Buzaglo, Karen E Skinner, Edward Stepanski, Cynthia Tankersley, Lee S. Schwartzberg; Concerto HealthAI, Memphis, TN; Vector Oncology, Memphis, TN; Concerto HealthAI, Boston, MA; West Cancer Center, Germantown, TN; University of Tennessee Health Sciences Center, Memphis, TN

Abstract Disclosures


Background: The National Comprehensive Cancer Network and the American Society of Clinical Oncology recommend that providers encourage early advance care planning with their patients1; yet, many cancer patients do not have advance directives (ADs). A potential reason for low AD rates is inadequate communication between the provider and patient. To address this gap, we developed an outpatient clinic AD initiative for any stage cancer patients via an ePRO system. The AD module was designed to ensure that patients are aware of ADs and to assess whether or not the patient had ADs, specifically a Living Will and/or a durable power of attorney. The study purpose was to assess patient AD status at the patient’s initial visit to an oncology clinic. Methods: This study used a retrospective, observational design that involved use of PRO and clinical data collected via the Patient Care Monitor™ (PCM), a web-based ePRO system linked to electronic medical record data. All data used in this study were collected as part of routine clinical care. All patients at an initial visit to an oncology clinic completed the PCM survey, including the AD module, via a handheld e-tablet. Results: Overall, 9,682 patients completed the AD module (mean age 63; 31% male/69% female; 58% married; 62% White, 35% Black). Cancer type was known for 75% of all patients (29% breast, 11% hematologic, 7% lung, 7% colorectal, 3% prostate, 17% other types). One third of all patients (33%) reported having an AD at the time of the initial visit to the oncology clinic, specifically 24% indicated having a Living Will and 9% a durable power of attorney. The remaining two-thirds (67%) indicated either NOT having an AD (56%) or not knowing if they had an AD (11%). Patients with ADs were more likely to be older (M=68 v. 60 yrs), male (38% v 31%), White (41% v 20% Black) and married/partnered (35% v 29%); ps <.0001. Conclusions: This study demonstrates that the majority of patients do not have ADs at the time of an initial visit to a community-based oncology practice. Using an ePRO system can be an innovative and efficient way to identify unmet needs of patients and link them to resources for developing advance directives. 1Brown AJ, Shen MJ, Urbauer D, et al. Room for improvement: An examination of advance care planning documentation among gynecologic oncology patients. Gynecol Oncol. Sep 2016;142(3):525-530.

Other Abstracts in this Sub-Category:


1. Predictors of suicide risk in adolescent and young adults (AYA) with cancer.

Meeting: 2019 ASCO Annual Meeting Abstract No: 11519 First Author: Jeremy Howard Lewin
Category: Symptoms and Survivorship - Psychosocial and Communication Research


2. Prognostic understanding in hematologic malignancies: A multicenter longitudinal study.

Meeting: 2019 ASCO Annual Meeting Abstract No: 11524 First Author: Kah Poh Loh
Category: Symptoms and Survivorship - Psychosocial and Communication Research


3. Comparing nonverbal synchrony in racially concordant and racially discordant oncology interactions.

Meeting: 2019 ASCO Annual Meeting Abstract No: 11525 First Author: Lauren M. Hamel
Category: Symptoms and Survivorship - Psychosocial and Communication Research